June 2015 Update

I am sorry to begin writing in my blog again.  I had stopped when things had gone well after my esophagus surgery a year ago in January 2014.  Unfortunately, my esophageal cancer has returned.  Based on a biopsy performed in May, the doctors found the same esophageal cancer in my liver.

To catch everyone up, after my surgery in January 2014, I gradually made good progress in my recovery.  Although, it required adjusting to a new life style of eating less and more frequently, I was able to regain my strength.  In fact, on July 4, I ran a 5 K race in Culpepper, Virginia with my family.  It was challenging for me because I have shortness of breath, but it was fun.  Although, I did not run as fast as I did before my surgery, I was able to run pretty well.  At the end of September, Steve and I travelled to Ireland and Amsterdam.  Steve had business meetings in Amsterdam, and we were able to spend 4 days with our son, Justin, in Cork, Ireland.  We were also able to visit Eoghan and his parents at their home.  We had a wonderful trip, and I felt pretty well. 

In February 2015, during my regular physical check ups, my internal medicine doctor noticed slightly elevated liver enzymes, but overall I was feeling well at that time.  In fact, our family had signed up, and had begun training, for the Salt Lake City half marathon in April.   As a precaution, the oncologist had me get a CT-Scan and a PET scan.  These did not identify any tumors.  From March to April, my liver levels continued to elevate, and I began not to feel as well.  I was tested for every possible liver ailment, but none was identified.  Also, an MRI did not identify any tumors.  In May, the doctors sent me for a biopsy of my liver, which found the same esophageal cancer.   Steve and I, as well as the doctors, were very surprised with this finding in light of the prior scans.  I was very disappointed, as I had been trying hard to take good care my body.  The doctors have said they cannot explain why I got esophageal cancer based on my life style.  They just say I got the rotten end of the deal.

We are now back dealing extensively with the oncologists.  We have been referred to a new oncologist, who specializes in gastrointestinal cancers.  I will begin chemotherapy next week.  I recognize that I need to receive the chemo; however, I have always been concerned about the side effects.  I appreciate having good medical care, as well as wonderful family and friend support in this treatment.

Currently, I don’t feel well most days.  My whole body aches.   I often feel nauseated and experience headaches and severe back and abdominal pains.  I stay busy with daily activity, especially attending many doctors’ appointments and the other daily activities.  It has been good to stay busy.  Also, I still try to do some activities that are enjoyable.  For example, last Saturday, Steve and I rode bicycles for 14 miles, and I still try to run/walk a few days a week.

I recognize that there are many people affected by my cancer.  I am grateful for Steve, my dear sweet husband.  He is a rock.  It has been great that he has been able to attend all the doctors’ appointments, and help research the best plan forward.  My children are the best cheerleaders and provide so much support to me.  It must be so hard on them.  My extended family members are such a comfort to me.  I have a close family of 10 siblings, and we love and care for each other.  I am especially close to my sisters who mean so much to me.  Steve’s family is also a great support.  I also have relied on my friends, including great church member support.

I have had so many spiritual experiences and so much comfort and peace during my entire time with my cancer.  I am so thankful for the knowledge I have that Heavenly Father lives.  I know beyond a shadow of a doubt he lives and loves me and knows me personally.  I have felt angels by my side.  One particular time was 1 ½ months ago when I was getting an MRI.   I had to be still on the table for 1-½ hours while the test was being given.  The nurse would come in to check on me and see how I was doing.  One time she came in and said, “Oh are you in a lot of pain” as she saw tears in my eyes.  I said no and asked her if she believed in God and proceeded to tell her that I had just felt angels around me.  They were near me, and it was as if they were trying to fix the problem.  She wiped the tears from my eyes, as I could not move. I know I am being blessed to be able to handle whatever it is that is ahead of me.  I will continue be a fighter and press on.

I want to say again I really appreciate the love and support of our family and friends.  We have received strength from your prayers and fasting on my behalf, especially the family and Church fast this past Sunday.  Thanks so much for your kindness and love.

I plan to update the blog periodically, as sometimes I don’t feel well enough to talk with each of you.